Pub. L. 113-166, sec. 3 (as amended)
SURVEILLANCE AND RESEARCH REGARDING MUSCULAR DYSTROPHY.
SEC. 3. SURVEILLANCE AND RESEARCH REGARDING MUSCULAR DYSTROPHY.
The second sentence of section 317Q(b) of the Public Health Service Act (42 U.S.C. 247b-18(b)) is amended by inserting before the period the following: “and, to the extent possible, ensure that data be representative of all affected populations and shared in a timely manner”.