EVALUATING THE EFFECTIVENESS OF NEWBORN AND CHILD SCREENING AND FOLLOWUP PROGRAMS.

SEC. 3. EVALUATING THE EFFECTIVENESS OF NEWBORN AND CHILD SCREENING AND FOLLOWUP PROGRAMS. Section 1110 of the Public Health Service Act (42 U.S.C. 300b-9) is amended— (1) in the section heading, by inserting “and followup” after “child screening”; (2) in subsection (a), by striking “of screening,” and inserting “, including with respect to timeliness, of screening, followup,”; (3) in subsection (b)— (A) in paragraph (1)— (i) by striking “counseling, testing” and inserting “treatment, counseling, testing, followup,”; and (ii) by inserting before the semicolon the following: “, including, as appropriate, through the assessment of health and development outcomes for such children through adolescence”; (B) in paragraph (2)— (i) by striking “counseling, testing” and inserting “treatment, counseling, testing, followup,”; (ii) by inserting “in a timely manner” after “in newborns and children”; and (iii) by striking “or” at the end; (C) in paragraph (3), by striking the period at the end and inserting a semicolon; and (D) by adding at the end the following: “(4) methods that may be identified to improve quality in the diagnosis, treatment, and disease management of heritable disorders based on gaps in services or care; or “(5) methods or best practices by which the eligible entities described in section 1109 can achieve in a timely manner— “(A) collection, delivery, receipt, and screening of newborn screening specimens; and “(B) diagnosis of heritable disorders in newborns.” ; and (4) by striking subsection (d) (relating to authorization of appropriations).