59 Ill. Adm. Code 117.120
Definitions
Section 117
Section 117.120Â Definitions
Unless the context otherwise
requires, the terms used in this Part have the meanings ascribed to them in
this Section.
"Abuse."
Any physical injury, sexual abuse or
mental injury inflicted on an individual other than by accidental means
(Section 1-101.1 of the Code).
Physical injury includes all injuries serious enough to
require immediate medical treatment by a physician, such as fractures and
lacerations which require suturing and all other injuries which because of the
circumstances or nature of the injury indicate possible abuse or neglect;
Sexual abuse includes but is not limited to any sexual
penetration or sexual conduct between an individual and other person if the
individual has been adjudicated legally disabled, or has a guardian, or is unable
to understand the nature of the act or is unable to give knowing consent, or is
injured, or alleges that there is, or there is evidence of, use of force,
coercion, or the exchange of money or anything of value; and
Mental injury includes use of words, signs, gestures or other
actions by anyone against an individual which intimidates, demeans, harasses,
causes emotional anguish or distress, ridicules, threatens, harms or shall
knowingly incite or precipitate maladaptive behavior on the part of an individual.
Mental injury also includes exploitation, which is any act that uses
individuals, their resources or their possessions for an agency employee's
personal gain or for an agency's benefit.
"Act."Â The Mental Health and Developmental
Disabilities Confidentiality Act [740 ILCS 110].
"Adult."Â A person between the ages of 18 and 60
years, inclusive.
"Agency."Â A community mental health or
developmental services organization which is a sole proprietorship,
association, partnership, corporation or organization, public or private,
either for profit or not for profit.
"Autism."Â A lifelong developmental disability
which is manifested by a combination of significant disturbances in
intellectual, sensory, cognitive, social, psychological, and emotional
functioning and is distinguished from other related disorders by impaired or
disordered language and communication; failure to develop appropriate social
relationships; ritualistic or compulsive behaviors.
"Cerebral palsy."Â A disorder dating from birth or
early infancy, non-progressive, characterized by absence or aberrations of
motor function (paralysis, weakness, incoordination) and of the other
manifestations of organic brain damage such as sensory disorder, seizures,
mental retardation, learning difficulty and behavior disorders
"Child."Â A person who is 17 years old or younger.
"Code."Â The Mental Health and Developmental
Disabilities Code [405 ILCS 5].
"Crisis management."Â Emergency services of an
intensive nature to alleviate stressful situations.
"Day."Â A calendar day unless otherwise specified.
"Department."Â The Department of Human Services.
"Department-funded out-of-home placement services."Â
Those services for which the Department pays the partial or full cost of care
of the residential placement.
"Developmental disability."
Disability which is
attributable to mental retardation, cerebral palsy, epilepsy or autism; or to
any other condition which results in impairment similar to that caused by
mental retardation and which requires services similar to those required by a
mentally retarded
person.
Such disability must originate before the age
of 18 years, be expected to continue indefinitely, and constitute a substantial
handicap
(Section 1-106 of the Code).
"Developmentally disabled."Â Having a developmental
disability.
"DSM-III-R."Â The Diagnostic and Statistical Manual
of Mental Disorders, Third Edition, revised (DMS-III-R, American Psychiatric
Association, 1987 edition).
"Employment-related services."Â Services which
allow an individual to participate in employment or which prepare an individual
for future participation in employment.
"Epilepsy."Â A chronic disorder of the brain which
is categorized by the tendency to have recurrent seizures. Seizures are
sudden, uncontrolled episodes of excessive electrical discharges of brain cells
with associated sensory, motor and/or behavioral changes.
"Family."Â The spouse and children and the parent
or parent substitute, as defined by this Section, sister, and brother of an
individual.
"Family Assistance Law."Â The Family Assistance Law
for Mentally Disabled Children [405 ILCS 80/3-1].
"Goal."Â An expected result or condition that
involves a specified period of time to achieve, that is specified in behavioral
terms in a statement of relatively broad scope, and that provides guidance in
establishing specific objectives directed toward its attainment.
"Habilitation."
An effort directed toward the
remediation of a disability or toward increasing
an individual's
level
of physical, mental, social or economic functioning,
independence and
self-respect.
Habilitation may include, but is not limited to, diagnosis,
evaluation, medical services, residential care, day care, special living
arrangements, training, education, sheltered employment, protective services,
counseling and other services
through interaction and participation in the
community (Section 1-111 of the Code).
"Home-based services."
Services provided to a
mentally disabled adult who lives in
his or her
own home. These
services may include but are
not
limited to:Â home health services,
service facilitation, crisis management, training and assistance in self-care,
personal care services, habilitation and rehabilitation services,
employment-related services, respite care, and other skill training that
enables a person to become self-supporting
(Section 2-3 of the Home-Base
Support Services Law).
"Home-Based Support Services Law."Â The Home-Based
Support Services Law for Mentally Disabled Adults [405 ILCS 80/2-1].
"Illinois resident."Â an individual legally
admitted to the United States who lives in Illinois, and has no present
intention to move from Illinois.
"Individual" or "individuals."Â A person
or persons who receives or receive services or support as described in this
Part.
"Informed consent."Â Permission voluntarily granted
by the individual or guardian for the release of information, for participation
in the program services specified in the service/treatment plan or for the use
of a specific procedure in the plan. Informed consent means full disclosure to
the individual or guardian of the information required for him or her to make
the decision intelligently.
"Legal guardian."
The court-appointed guardian
or conservator of the person
(Section 1-110 of the Code).
"Licensed Clinical Psychologist."Â A clinical
psychologist licensed by the Clinical Psychologist Licensing Act [225 ILCS 15].
"Mental disability."Â A developmental disability, a
mental illness in an adult or an emotional disturbance in a child.
"Mentally disabled adult."
A person between the
ages of 18 and 60 years who lives in his or her own home; who needs home-based
services, but does not require 24-hour-a-day supervision; and who has one of
the following conditions:Â severe autism, severe mental illness, severe or
profound mental retardation, or severe and multiple impairments
(Section
2-3 of the Home-Based Support Services Law).
"Mental retardation."
Significantly subaverage
general intellectual functioning which exists concurrently with impairment in
adaptive behavior and which originates before the age of 18 years
(Section
1-116 of the Code).
"Natural support network."Â a social circle
affiliated with an individual that may include, but is not limited to, family
members, friends, co-workers and peers.
"Neglect."
Failure to provide adequate medical
or personal care or maintenance to
an individual,
which failure results
in physical or mental injury to
an individual
or in the deterioration of
the individual's physical or mental condition
(Section 1-117.1 of the
Code).
"Objective."Â An expected result or condition that
involves a specified period of time to achieve, that is specified in behavioral
terms and that is related to the achievement of a goal.
"Own home."
In one's "own home" means
that a mentally disabled adult lives alone; or that a mentally disabled adult
is in full-time residence with his or her parents, legal guardian, or other
relatives; or that a mentally disabled adult is in full-time residence in a
setting not subject to licensure under the Nursing Home Care Act
[210 ILCS
45]
or the Child Care Act of 1969
[225 ILCS 10],
with
three
or fewer other adults unrelated to the mentally disabled adult who do not
provide home-based services to the mentally disabled adult.
(Section 2-3
of the Home-Based Support Services Law).
"Parent" or "parent substitute."Â A
person acting in the capacity of a parent with respect to an individual with
mental disabilities who is 17 years old or younger. The parent shall be:
The legal guardian, if a legal guardian has been determined;
The natural or adoptive parent, if no legal guardian has been
determined;
A person licensed as a foster parent and providing care under
the Child Care Act of 1969; or
Another relative who is 21 years old or older who has a
parent-like relationship with the individual with mental disabilities and who wishes
to serve as the parent substitute. This relative shall be considered the
parent for purposes of this Part if there is no objection from:
The individual;
The legal guardian, if a legal guardian has been determined;
or
The natural or adoptive parent, if no legal guardian has been
determined.
"Primary examiner."Â The licensed clinical
psychologist and/or psychiatrist and/or physician asked to conduct an
evaluation to determine whether an individual applying for programs under this
Part meets the criteria for severe level of disability.
"Provider agency." (See "Agency.")
"Random selection."Â To ensure equal opportunity to
the programs described in this Part, the Department shall use a random
selection process. The selection process shall be implemented in the following
manner:Â children and adults shall be selected separately, based on two
programs and two line item appropriations; residents from each region of the
State shall be selected in proportion to the population of that region; an
equal number of adults with a developmental disability and mental illness shall
be selected; and an equal number of children with a developmental disability
and an emotional disturbance shall be selected. There shall be four pools
within each region:Â children with an emotional disturbance; children with a
developmental disability; adults with mental illness; adults with a
developmental disability. Within each of the separate pools of applicants
identified above, a computer shall randomly number all preliminary applications
from one through the number of applications within that pool. The proper
number of persons to be enrolled from each pool shall be chosen according to
the per capita approach described above. This number of people (number one
through the maximum permitted for each pool) shall be chosen as provisional
participants. The provisional participants shall be requested to verify
eligibility criteria and diagnosis through evaluation. If any provisional
applicant is found ineligible, or for any other reason fails to enter the
program, the next alternate based on the sequential numbering shall be selected
for enrollment after undergoing verification of eligibility and diagnosis
through evaluation.
"Region."Â A service division of the State created
by the Department in accordance with Section 8 of the Mental Health and
Developmental Disabilities Administrative Act [20 ILCS 1705/8].
"Rehabilitation."Â An effort toward the
amelioration of a disability or toward restoring an individual's level of
physical, mental, social or economic functioning, independence and
self-respect.
"Relative."Â A person having
any of the
following relationships by blood, marriage or adoption:Â parent, son, daughter,
brother, sister, grandparent, uncle, aunt, nephew, niece, great grandparent,
great uncle, great aunt, stepbrother, stepson, stepdaughter, stepparent or
first cousin
(Section 2-3 of the Home-Based Support Services Law).
"Secretary."Â The Secretary of the Department of
Human Services or his or her designee.
"Service facilitation."Â Assisting an adult
individual participating in the Home-Based Support program with the development
and modification of a service/treatment plan, helping the individual gain
access to the services identified in the plan, and advocating on the
individual's behalf if services are not being provided as prescribed in the
plan or assisting a family participating in the Family Assistance Program in
determining the most appropriate use of resources to address the needs of the
child with a severe mental disability within the context of the family.Â
Assisting families also includes providing information about local support
services, locating, advocating for or creating services that conform to the
individual family's desires.
"Service facilitator."Â An agency representative
with experience in working with mentally disabled persons and who provides
service facilitation.
"Service/treatment plan" or "plan."Â The
basis on which services shall be planned by the individual, a service
facilitator and other persons chosen by the individual, provided by a service
agency, an organization, or an individual and reimbursed by the Department for
purposes of the Home-Based Support Services Program.
"Services."Â Services which are rendered and are
partially or wholly funded by the Department.
"Severe autism."
A lifelong developmental
disability which is typically
manifested
before 30 months of age and is
characterized by disturbances
in the rate and sequences of cognitive,
affective, psychomotor, language and speech development.
A person shall be
determined severely autistic,
for purposes of this Part,
if
he or
she manifests all of the following characteristics:Â disturbance in the
capacity to relate appropriately to people, events and objects; absence,
disorder or delay of language; speech or meaningful communication; unusual or
inconsistent response to sensory stimuli in one or more of the following:Â
sight, hearing, touch, pain, balance, smell, taste, or the way the person holds
his or her body; and insistence on sameness as shown by stereotyped or
repetitive behavioral patterns, repetitive movements, abnormal preoccupation,
or resistance to change. There shall be an absence of the characteristics
associated with schizophrenia, such as delusions, hallucinations, loosening of
associations and incoherence. (Section 2-3 of the Home-Based Support Services
Law and Section 3-3 of the Family Assistance Law)
"Severe emotional disturbance."Â A child with a
severe emotional disturbance is one who, on the basis of a psychosis or other
emotional or behavioral disorder, suffers from severe disability which requires
sustained treatment interventions for a year or more, and which generally
requires attention from two or more agencies.
"Severe mental illness."
The manifestation of
both the following characteristics:
the presence of a
major mental
disorder in
adults, or
a mental disorder in children or adolescents,
classified in the DSM-III-R, excluding alcohol or substance abuse, Alzheimer's
disease, or other forms of dementia based upon organic or physical disorders;
and a functional disability of an extended duration for adults, or any duration
for children or adolescents, which results in substantial limitations in major
life activities. (Section 2-3 of the Home-Based Support Services Law and
Section 3-3 of the Family Assistance Law)
"Severe or profound mental retardation."Â The
manifestation
of all of the following characteristics:
development at a rate
approximately four and one-half or more standard deviations below the mean as
determined through intellectual assessment; lack of development primarily in
the cognitive domain; and impairment of adaptive behavior. This impairment
constitutes a substantial disability and can be expected to continue
indefinitely. (Section 2-3 of the Home-Based Support Services Law and Section
3-3 of the Family Assistance Law)
"Severe and multiple impairments."
The
manifestation of all the following characteristics:
multiple handicaps in
the physical, sensory, behavioral or cognitive domains which constitute a
severe or profound handicap; development at substantially less than expected
rate for the age group in the cognitive, affective or psychomotor domains; and
a diagnosis of a developmental disability as defined in Section 1-106 of the
Code. (Section 2-3 of the Home-Based Support Services Law and Section 3-3 of
the Family Assistance Law)
"Skills training."Â Services aimed at improving an
individual's ability to perform the activities of daily living and/or community
living and/or work-related proficiencies.
"Special education program."Â Specially designed
instruction, at no cost to the parent or individual, to meet the unique needs
of an individual with a disability up to age 21, including classroom
instruction, instruction in physical education, home instruction and
instruction in hospitals and institutions (Education for the Handicapped Act
(20 U.S.C.A. 1400 (1996)) and the rules of the State Board of Education at 23
Ill. Adm. Code 226).
"Substantial disability."Â A physical and mental
disability, resulting from mental retardation, cerebral palsy, epilepsy, or
autism, of such severity that, alone or in connection with social, legal, or
economic constraints, it requires the provision of specialized services over an
extended period of time directed toward the individual's social, personal or
economic habilitation or rehabilitation.
"Supported employment."Â Competitive work in
integrated work settings for incidivuals with severe mental disabilities for
whom competitive employment has not traditionally occurred or for individuals
for whom competitive employment has been interrupted or intermittent as a
result of a severe disability and who need ongoing support services to perform
such work.
"Twenty-four-hour-a-day-supervision."
Care by a
trained mental health or developmental disability professional on an ongoing
basis
(Section 2-3 of the Home-Based Support Services Law).