89 Ill. Adm. Code 146.420
Hemophilia Treatment Centers
Section 146.420
Hemophilia Treatment Centers
Each Hemophilia Treatment
Center must annually, in a format specified by the Department, attest that the
services provided by the center include all of the following:
a) Twenty-four
hour attendance by a physician.
b) A
Core Team.
c) An
Extended Team readily available and accessible for evaluations or referrals.
d) Pediatric
hematology services.
e) Dental
program.
f) Protocols
for the management of complications of inherited bleeding disorders.
g) Comprehensive
psychosocial services and counseling.
h) Genetic
counseling and testing.
i) Access
to laboratory services.
j) A comprehensive home infusion therapy
program that provides instruction, ongoing education, monitoring and
supervision by medical professionals experienced in the management of hemophilia.
k) Twenty-four hour emergency services with
written treatment protocols and a hematologist on-call.
m) Twenty-four hour availability of, or
accessibility to, all products for treating hemophilia and related bleeding
disorders as recommended by the National Hemophilia Foundation Medical and
Scientific Advisory Committee.
n) Active collaboration with local, State and
national hemophilia organizations to provide outreach and education.
o) Established linkages with private, public
and voluntary service organizations and health care providers to assure a full-range
of services to meet clinical and psychosocial needs of the patient and the patient's
family.