89 Ill. Adm. Code 432.5
Criteria by Which Proposed Research Will be Evaluated
Section 432
Section 432.5 Criteria by
Which Proposed Research Will be Evaluated
a) Proposed research involving children and families currently or
formerly served by the Department submitted to the office designated by the
Director, shall meet the following criteria:
1) offers minimal risk to children and families served by the
Department;
2) assures that the safest procedures are used consistent with
sound research design and methodology;
3) makes adequate provision to protect the privacy rights of
children and families and to maintain confidentiality of records;
4) maintains human dignity;
5) shows promise of producing, confirming, or otherwise advancing
knowledge of child or family emotional or physical conditions;
6) assures that subjects will be selected in an equitable manner
consistent with the goals of the research whenever appropriate;
7) assures that adults, older children and infants have been
considered in that order for participation in the proposed research wherever
appropriate; and
8) assures that, when feasible, the research will be used for
diagnostic and treatment purposes to directly benefit participating subjects.
b) The time and inconvenience requested of children and families
participating in research and the extra workload that may be borne by
Department staff must be justified by the expected benefits derived from the
research, and the soundness of the research design.
c) Selection of children and families who may participate in
research will not be based solely on administrative convenience, availability
of a population living in conditions of social or economic deprivation, or
convenient access to the population.